About Sickle Cell Disease and Trait

Sickle Cell is a common and often life-threatening disease, occurring in approximately one in every 400 African-American infants born in the United States each year.  Perhaps you know of someone who has sickle cell disease like Nala Hunter. Nala, a bright, lovable 7-year old was diagnosed at birth with this disorder. As a result, she faces bouts with severe pain, increased infections, fatigue, a lifetime of prescription medications along with the great possibility of vital organ damage and failure. In February 2012, Nala had a stroke and Nala Huntersubsequently developed speech problems. Currently, she is undergoing speech therapy in an attempt to resolve damage done to her brain. Most of the medical care of sickle cell disease involves prevention and treatment of complications.  Early identification, like Nala received, can help prevent and manage some of the serious medical problems associated with the disease. In the United States:

  • SCD affects 90,000 to 100,000 Americans.
  • SCD occurs among about 1 out of every 500 Black or African-American births.
  • SCD occurs among about 1 out of every 36,000 Hispanic-American births.
  • SCD occurs among about 1 out of every 60,000 Caucasian-American births.
  • SCT occurs among about 1 in 12 Blacks or African Americans.
Source: http://www.cdc.gov/NCBDDD/sicklecell/data.html, 4/3/2012,
Wilson, M.D., Felicia, History of Sickle Cell Disease, Director, Division of Hematology/Oncology, University of South Alabama

With the proper care and treatment, most times individuals with sickle cell disease can lead a productive life. That’s why we hope that you will join us in support of sickle cell by walking with us when we host our annual walk-a-thon to increase community awareness of sickle cell disease and trait. The “5K Walk for Sickle Cell” will be held Labor-day weekend, Saturday, September 7, 2013. The route will take walkers thru historic Belmont/DeVilliers neighborhood, thriving downtown Pensacola plus scenic Palafox Pier beginning at 8am. We would like you to form a team to participate in this walk. Each team will have a $1000 fundraising goal. Registration will open June1 and we will host a kick-off rally, Saturday, June 29, 2013, 9am at Fricker Community Center, 900 North F St.

Your assistance will help kids like Nala, by supporting educational awareness, social development programs, counseling’s, screenings, client support services, financial assistance for prescription medications and other emergency needs. Volunteering will mean so much to people with sickle cell disease in this community.  Your support of this event will help increase the quality of life for many children and adults who suffer from

Sickle Cell Disease.